Yearly Archives: 2014

  • my-state-hospital-nightmare

Respecting end-of-life decisions for people with disabilities

My mother was 71 the last time she was hospitalized for a serious illness that she would end her life. “Will you bring my CD player to the hospital so that I can listen to Jimmy Buffett?” she asked. I’ll never forget my mom’s smile (and the nurses too) as she listened to “Cheeseburger in Paradise” […]

November 26th, 2014|Special Hope Blog|
  • sad

Developmental Disabilities 101 at UCSF’s Mini-Medical School

I sat in a child size chair and watched as my two-year old son, Matthew, dressed in his green Gymboree shorts and a blue striped polo shirt, stacked small multi-colored blocks. “See how he is drooling a little?” asked the child psychologist, “That means he is working hard.” She would later use the word “developmentally […]

November 12th, 2014|Special Hope Blog|
  • service dog

Service Dogs 101 for people with developmental disabilities

The Special Hope Foundation awarded a grant to JFK Partners UCEDD and LEND at the University of Colorado last February to help a student group, Disability Dialogue, expand their program.

The group, which is committed to examining health care disparities affecting individuals with developmental disabilities, engages speakers in all medical disciplines, community support organizations, parents […]

October 9th, 2014|Special Hope Blog|
  • dog

Living with disabilities: New ASAN toolkit ensures support in every setting

Home and community-based services

They are an important source of support for many people with disabilities who need help to live in the community. But so far, many of these services have been provided in restrictive or group settings, instead of people’s own homes, communities, or integrated workplaces.

The Autistic Self Advocacy […]

September 22nd, 2014|Special Hope Blog|

ASAN Healthcare Transitions Toolkit

ASAN Healthcare Toolkit

September 2nd, 2014|Board References|

People with disabilities: 10 tips for preventing healthcare catastrophes

  • A woman is brought to the psychiatric emergency room where she is separated from her supporter. She gets scared and agitated because she can’t communicate, and is treated with physical and chemical restraint.
  • A non‐verbal patient couldn’t be discharged from the hospital because he wasn’t eating.
    The reason he wasn’t eating is that he needs someone […]
August 19th, 2014|Special Hope Blog|

ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

asan

Autistic Self Advocacy Network (ASAN)has boosted the Special Hope Foundation’s mission of establishing comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs.

And we couldn’t be happier.

Their 2013 report confirmed that youth with intellectual and […]

July 19th, 2014|Special Hope Blog|
  • With StoryCorps

Recording disability history, one story at a time.

Alice Wong, who has spinal muscular atrophy, knew that it was important to get regular pelvic exams. But the woman’s health practice where her doctor works did not have a single adjustable height exam table. So instead, Alice went to “the clinic upstairs” where they had just one adjustable exam table. There she was […]

June 30th, 2014|Special Hope Blog|
  • wrap

The AADMD Conference is a wrap! Here is what you missed…

By Laura Shumaker


When we last left off, we were completing day one of the American Academy of Developmental Medicine and Dentistry (AADMD) Conference. A recap here.

This years conference is in conjunction with The Special Olympics 2014 USA Games, the Special Olympics Healthy Athletes Program, and The National […]

June 19th, 2014|Special Hope Blog|
  • AADMD

Day One of the AADMD Conference, Special Hope Foundation Style

Laura Shumaker-  Communications Director Special Hope Foundation


 

I am reporting to you LIVE from Princeton New Jersey after the first Day of the American Academy of Developmental Medicine and Dentistry (AADMD) Conference. As many of you know, this is a conference that The Special Hope Foundation provided funding for, as the organization lives and breathes […]

June 17th, 2014|Special Hope Blog|
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