My mother was 71 the last time she was hospitalized for a serious illness that she would end her life. “Will you bring my CD player to the hospital so that I can listen to Jimmy Buffett?” she asked. I’ll never forget my mom’s smile (and the nurses too) as she listened to “Cheeseburger in Paradise” […]
I sat in a child-size chair and watched as my two-year-old son, Matthew, dressed in his green Gymboree shorts and a blue-striped polo shirt, stacked small multi-colored blocks. “See how he is drooling a little?” asked the child psychologist, “That means he is working hard.” She would later use the word “developmentally delayed” to describe […]
The Special Hope Foundation awarded a grant to JFK Partners UCEDD and LEND at the University of Colorado last February to help a student group, Disability Dialogue, expand their program.
The group, which is committed to examining health care disparities affecting individuals with developmental disabilities, engages speakers in all medical disciplines, community support organizations, parents […]
Home and community-based services
They are an important source of support for many people with disabilities who need help to live in the community. But so far, many of these services have been provided in restrictive or group settings, instead of people’s own homes, communities, or integrated workplaces.
- A woman is brought to the psychiatric emergency room where she is separated from her supporter. She gets scared and agitated because she can’t communicate, and is treated with physical and chemical restraint.
- A non‐verbal patient couldn’t be discharged from the hospital because he wasn’t eating.
The reason he wasn’t eating is that he needs someone […]
Autistic Self Advocacy Network (ASAN)has boosted the Special Hope Foundation’s mission of establishing comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs.
And we couldn’t be happier.
Alice Wong, who has spinal muscular atrophy, knew that it was important to get regular pelvic exams. But the woman’s health practice where her doctor works did not have a single adjustable height exam table. So instead, Alice went to “the clinic upstairs” where they had just one adjustable exam table. There she was […]
When we last left off, we were completing day one of the American Academy of Developmental Medicine and Dentistry (AADMD) Conference. A recap here.
Laura Shumaker, Communications Director Special Hope Foundation
I am reporting to you LIVE from Princeton New Jersey after the first Day of the American Academy of Developmental Medicine and Dentistry (AADMD) Conference. As many of you know, this is a conference that The Special Hope Foundation provided funding for, as the organization lives and breathes […]