A Special Hope Foundation Retrospective: 2014 Grants

Special Olympics New York athlete and coach

Special Olympics New York athlete and coach

The Special Hope Foundation is looking back at the grants we have provided over the years.

We have been fortunate to have connected with like minded people and organizations that support our mission. This week, we are listing our 2014 grants, but first:


The Special Hope Foundation was created to provide financial support to organizations that promote the establishment of comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs.

We support programs that improve delivery of healthcare to adult customers with developmental disabilities and include at least one of the following:

  • Improve health practitioner competency through education and/or training programs
  • Address the current inadequate reimbursement system
  • Advance formal care coordination including the utilization of trained support personnel/caregivers
  • Increase public awareness regarding the inadequacies of developmentally disabled care to advance systemic change
  • Social policy research
  • Identify and overcome barriers to high-quality healthcare access
  • General operating support is only considered for grantees that have previously utilized our project funding

2014 Grants

University of Rochester’s UCEDD and LEND

www.urmc.rochester.edu/childrens-hospital/developmental-disabilities/scdd.aspx

Funding was provided for the organization’s “Special Olympics Team Trainer Program.”  The University of Rochester and Special Olympics of NY collaborated to implement and test a Team Trainer Program. Health care students partnered with Special Olympic athletic teams to increase athletes’ participation in health care screenings, support coaches, facilitated follow-up care with healthcare providers, and incorporated health and wellness activities into team trainings.

University of Alaska Center for Human Development, UCEDD and LEND

www.uaa.alaska.edu/centerforhumandevelopment/

Funding was provided over four years for the “Improving Healthcare for Adults with IDD in Alaska” project.   This project used a multi-pronged approach to improve healthcare services for adults with I/DD in Alaska by:

  • Developing training and resources for healthcare providers
  • Increasing student awareness of the healthcare needs by establishing a student chapter of the AADMD
  • Providing health promotion materials to individuals and families/caregivers.  

Sonoran UCEDD

sonoranucedd.fcm.arizona.edu

A four year grant was awarded to the Sonoran UCEDD for their “Arizona Youth in Transition” project.  The Sonoran UCEDD worked with the University of Arizona College of Medicine and their established patient centered medical home for adults with developmental disabilities to increase the capacity of future and current health care providers to facilitate effective transitions from pediatric to adult health care for youth with DD. This was accomplished through building a strong inter-professional AADMD student chapter, identifying needed skills, creating curriculum and providing targeted technical assistance.

JFK Partners, UCEDD and LEND, University of Colorado

www.ucdenver.edu/academics/colleges/medicalschool/programs/JFKPartners/

A four year grant was awarded to JFK Partners for building upon an existing student group “Disability Dialogue”. The group committed to examining health care disparities affecting individuals with developmental disabilities.   This funding provided national affiliation and structure, incentivized students during their years of preparation, and solidified community partnerships.

Westchester Institute for Human Development

https://www.wihd.org

WIHD was granted funding over three years for their Family Medicine Resident Rotation project. With the funding, they continue to develop, implement and evaluate training on Developmental Medicine for their medical school residents. This training includes an elective rotation in their adult medical outpatient clinic, an annual workshop for first year residents, and two Developmental Medicine Grand Rounds per year at their Family Medicine Residency Program.

Starr Center on Intellectual and Developmental Disabilities , Brandeis University

http://lurie.brandeis.edu/about/starr.html

Funds were awarded to Brandeis University for a planning grant to design a nurse practitioner model for delivering primary and coordinated care to adults with disabilities. This project was a collaborative effort between the Brandeis Starr Center, CLASS, a day rehabilitation agency, University of Massachusetts at Lowell School of Nursing, and state agencies. Products include a logic model of the intervention and materials for training nurses to provide care and service coordination.


Meet our Self-Advocate Advisory Committee! The committee reviews the proposals that the Foundation receives and provides input on whether or not applicants should receive funding, and whether a proposal is designed well for people with disabilities:

Melissa Crisp-Cooper

Ivanova Smith

Brent White

Yolanda Vargas

Katie Murphy

Stay tuned for more profiles of this incredible group of Self-Advocates.

2017-05-03T00:24:41+00:00 April 20th, 2017|Special Hope Blog|