The Special Hope Foundation was busy in 2013.
Part III of our retrospective series will show you how. But first:
The Special Hope Foundation was created to provide financial support to organizations that promote the establishment of comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs.
We support programs that improve delivery of healthcare to adult customers with developmental disabilities and include at least one of the following:
- Improve health practitioner competency through education and/or training programs
- Address the current inadequate reimbursement system
- Advance formal care coordination including the utilization of trained support personnel/caregivers
- Increase public awareness regarding the inadequacies of developmentally disabled care to advance systemic change
- Social policy research
- Identify and overcome barriers to high-quality healthcare access
- General operating support is only considered for grantees that have previously utilized our project funding
Special Hope Foundation Grants 2013
Westchester Institute for Human Development
A grant was awarded to develop and field test training modules designed to guide parents and their young adult children with developmental disabilities through successful transitions from pediatric to adult health care. This online tool will address a wide variety of choices faced during the transition period.
The Vanderbilt Kennedy Center
Funding was provided for the creation of an electronic toolkit for primary care of adults with developmental disabilities. This online resource will provide health care PR actioners with additional resources to accurately assess and treat their patient population.
The Elizabeth M. Boggs Center
A planning grant was awarded for the development of “The New Jersey Developmental Disabilities Transition to Adult Health Care Forum”. This collaborative process will focus on building the capacity of the adult health care system and developing an action blueprint for transition to adult health in New Jersey.
Coalition for Compassionate Care of California
Funding was provided to CCCC to perform an environmental scan and make recommendations relating to conservatorship issues in California for healthcare decision making for adults with developmental disabilities.
The Achievable Foundation
Funds were awarded to provide support to the Achievable Clinic during their first year of operation. The clinic is a community health center developed to provide culturally appropriate, coordinated, high quality and comprehensive primary and specialty care services in a medical home setting for individuals with developmental disabilities.
University of Chicago
A grant was awarded to develop a collaborative health care model to provide mental health care services within a primary care setting. As part of this model, a dedicated case manager will be hired to strengthen care coordination and to develop a neuropsychological battery of assessments.
Rose F. Kennedy UCEDD, Albert Einstein College of Medicine of Yeshiva University
A three-year grant was awarded to the RFK UCEDD to develop a formal Care Coordination model where case management services will be integrated in the Health Home model. This project is a collaboration between the RFK UCEDD and the Developmental Disabilities Health Alliance of New York.
Office of Developmental Primary Care (UCSF)
Funds were awarded to provide continued support to ODPC to build primary care health care infrastructure for adults with developmental disabilities. Through this grant, ODPC will engage self-advocates, parents and disability advocacy organizations in policy advocacy and will further their clinical, operational and training activities.
Autistic Self Advocacy Network (ASAN)
A grant was awarded to ASAN to support the development of the ASAN Disability Policy Center. The policy center will provide resources to advocates on key policy issues impacting the intellectual and developmental disability community, with a special emphasis on addressing health disparities and the quality of both health care and long term services and supports for the I/DD community.