Healthcare for transition age youth and adults with developmental disabilities
Accessing quality healthcare requires communication, cooperation and advanced planning. It’s critical that people with disabilities receive the resources and support they need to stay healthy. The Special Hope Foundation is proud to support the work of our grantee The Office of Developmental Primary Care (ODPC) .
What they do:
The Office of Developmental Primary Care was developed to build the healthcare system’s capacity to serve adults with developmental disabilities through clinical services, advocacy, research, training and technical assistance. The program, within the Department of Family and Community Medicine is dedicated to improving health outcomes for people with developmental disabilities across the lifespan.
The greatest area of need is for adolescents and adults. The ODPC partners with the Autistic Self Advocacy Network (ASAN), The Arc of California and the Special Hope Foundation to develop resources for clinical service, advocacy, research and training.
This three year initiative will improve the quality of care for youth and adults in Northern California by focusing on three basic areas of need:
- Access to communication,
- Behavior support
- End of life planning.
This project will leverage the ODPC existing initiatives and partnerships. These partnerships will expand opportunities to gather and distribute information and best practices to people with disabilities and to clinicians and stakeholders throughout Northern California.
The Office of Developmental Primary Care:
- Provides primary care to some of the most medically fragile and behaviorally complex patients in the Bay Area
- Has authored many policy briefs and proposals to educate policy makers
- Helped research teams make their work more relevant and targeted to improving health outcomes and quality of life
- Trained over 3,100 health professionals and developed a popular website.
All people with a developmental disability have access to health services that maximize their wellness and function.
Health care for people with developmental disabilities is interdisciplinary, team-based care, with patients and caregivers at the center of the team.
The mission of the Special Hope Foundation is to promote the establishment of comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs. We are honored to support the work of the Office of Developmental Primary Care.