Resources

Resources 2017-05-02T18:53:42+00:00

Photo: Rick Guidotti, Positive ExposureAgencies

Autistic Self Advocacy Network
Office of Developmental Primary Care, UCSF
AADMD American Academy of Developmental Medicine and Dentistry
DDNA  Developmental Disabilities Nurses Association
CDC Developmental Disabilities

Health Care Research – Adults with Developmental Disabilities 

Our Lives, Our Health – Self-Advocates Speaking Out About Our Experiences with the Medical System
The Affordable Care Act and the i/DD Community
The Case for Designating People with IDD as Medically Underserved Populations
Organ Transplantation and People with I/DD
The Transition to Adulthood for Youth with i/DD
Health Care Access & People with Disabilities
A Blind Spot in the System, a 2008 report on the current state of healthcare delivery for those with developmental disabilities
Closing the Gap – The Surgeon General’s report on Health Disparities and Intellectual Disability
The Current State of Health Care for People with Disabilities
Special Olympics Research

Photo: Rick Guidotti, Positive ExposurePolicy Resources

Organ Transplantation and People With Disabilities: A Toolkit for State Advisors

Health Care Resources

ASAN Healthcare Transition Toolkit 
Primary Care for Adults on the Autism Spectrum
Primary Care for Adolescents with Developmental Disabilities
Healthcare for Adults with Intellectual and Developmental Disabilities:  Toolkit for Primary Care Providers from Vanderbilt University
Access to Medical Care from the Departments of Justice and Health and Human Services
CDC Fact Sheets
Oral Hygiene Strategies
Medicaid Managed Care Guidelines from the National Council on Disability

Funding Resources

Getting an Insider’s View:  A Conversation with Special Hope Foundation’s Executive Director