The Special Hope Foundation was created to provide financial support to organizations that promote the establishment of comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs.
In the next few weeks, we’ll be sharing the history of the grants we have awarded since our inception, starting with 2011. We have truly evolved as a foundation, and are proud of the organizations we have supported and the partnerships we have developed.
The Special Hope Foundation supports programs that improve delivery of healthcare to adult customers with developmental disabilities and include at least one of the following:
- Improve health practitioner competency through education and/or training programs
- Address the current inadequate reimbursement system
- Advance formal care coordination including the utilization of trained support personnel/caregivers
- Increase public awareness regarding the inadequacies of developmentally disabled care to advance systemic change
- Social policy research
- Identify and overcome barriers to high-quality healthcare access
- General operating support is only considered for grantees that have previously utilized our project funding
Special Hope Foundation Grants 2011
The Arc was awarded a grant to continue their work with UCSF’s Department of Family and Community Medicine, the Golden Gate Regional Center, San Francisco’s Department of Public Health and Health Plan San Mateo to develop the CART Model of health care coordination for youth and adults with developmental disabilities. CART stands for:
- Clinical services in University and community settings
- Advocacy to influence policy
- Research programs in health services and education to rigorously study the cost effectiveness of clinical and training innovations
- Training and technical assistance for medical professionals and caregivers
The plan includes yearly health assessments conducted by experienced developmental disability nurse practitioners to ensure that the needs of individuals with developmental disabilities and their caregivers do not go unrecognized.
Adults with developmental disabilities experience a high turnover rate of caregivers. As a result, they are often put in the frustrating position of communicating their needs and preferences to staff, a process which can be unreliable. East Bay Innovations was awarded a grant to develop a comprehensive video based training program that addressed all aspects of an individual’s care for new staff members, substitute staff members and medical/hospital personnel.
DREDF received funding for their campaign for healthcare justice. The Health Care Stories Project documents the challenge of accessing healthcare highlighting some of the barriers and stereotypes faced by individuals with developmental disabilities. These brief video stories place a human face on real issues that are poorly understood in the medical community
Thinking Ahead is a program that addresses end of life issues with the use of materials and webinars for adults with developmental disabilities and their caregivers. Funds were provided for the education of community care providers and health care professionals.
The Achievable Foundation was awarded a grant to support the creation of The Achievable Clinic— a first-of-its-kind, multidisciplinary medical home for individuals with developmental disabilities and their families. Their mission is to improve the quality of life for children and adults living in Los Angeles County who have intellectual and developmental disabilities by providing support and healthcare services, allowing them to live healthy, independent, and productive lives.